Vol. 15 No. 2 (2023): Arch Pub Health
Public Health

Assessing the Quality of Life in Individuals with Multiple Sclerosis

Denis Arsovski
University ‚‚St. Kliment Ohridski‘‘ Bitola, Higher Medical School, Republic of North Macedonia
Domnika Rajchanovska
University ‚‚St. Kliment Ohridski‘‘ Bitola, Higher Medical School, Republic of North Macedonia
Gordana Ristevska-Dimitrovska
University‚‚St. Kliment Ohridski‘‘ Bitola, Higher Medical School, Republic of North Macedonia
Viktorija Prodanovska-Stojchevska
University ‚‚St. Kliment Ohridski‘‘ Bitola, Higher Medical School, Republic of North Macedonia

Published 2023-12-30

Keywords

  • multiple sclerosis,
  • rehabilitation,
  • quality of life,
  • functional impairments,
  • activities of daily lives

How to Cite

1.
Arsovski D, Rajchanovska D, Ristevska-Dimitrovska G, Prodanovska-Stojchevska V. Assessing the Quality of Life in Individuals with Multiple Sclerosis. Arch Pub Health [Internet]. 2023 Dec. 30 [cited 2024 Mar. 2];15(2). Available from: https://id-press.eu/aph/article/view/6077

Abstract

Multiple sclerosis (MS) is linked with a wide range of physical, psychological, and societal challenges that significantly impact the quality of life (QoL) of those affected by the disease. This comprehensive study delved into the multifaceted aspects of MS, aiming to unravel the intricate relationships between disability, self-efficacy, acceptance of illness, and various dimensions of QoL. Material and methods: The study, encompassing 778 participants from diverse backgrounds, highlighted the nuanced experiences of individuals with MS, emphasizing the importance of understanding the unique challenges faced by different age groups and disease subtypes. The findings revealed profound connections between MS-related symptoms and psychological well-being, underscoring the necessity for tailored interventions. Notably, self-efficacy and acceptance of illness emerged as pivotal factors influencing QoL, providing crucial insights for healthcare providers and policymakers.Furthermore, this study underscored the importance of a holistic approach to MS management, integrating biomedical and psychosocial perspectives. The study’s outcomes offer valuable direction for future research endeavors, advocating for longitudinal studies to capture the dynamic nature of QoL challenges, exploring patient perspectives through qualitative methods, and investigating the impact of socioeconomic factors on QoL outcomes. Additionally, the potential of telemedicine and digital interventions in providing continuous support and evidence-based counseling for individuals with chronic conditions is highlighted. By addressing these critical areas, future research endeavors can contribute to a more compassionate and empowering framework, enhancing the lives of those affected by MS and their families.

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References

  1. Barkhane Z, Elmadi J, Satish Kumar L, Pugalenthi LS, Ahmad M, Reddy S. Multiple Sclerosis and Autoimmunity: A Veiled Relationship. Cureus. 2022;14(4):e24294. doi: 10.7759/cureus.24294.
  2. Post MW. Definitions of quality of life: what has happened and how to move on. Top Spinal Cord Inj Rehabil. 2014; 20(3):167-80. doi: 10.1310/sci2003-167. PMID: 25484563;
  3. Drew, Margaret & Tippett, Lynette & Starkey, Nicola & Isler, Robert. (2008). Executive dysfunction and cognitive impairment in a large community-based sample with Multiple Sclerosis from New Zealand: A descriptive study. Archives of clinical neuropsychology: the official journal of the National Academy of Neuropsychologists. 23. 1-19. doi:10.1016/j.acn.2007.09.005.
  4. Hosseini Z, Homayuni A, Etemadifar M. Barriers to quality of life in patients with multiple sclerosis: a qualitative study. BMC Neurol. 2022;22(1):174. doi: 10.1186/s12883-022-02700-7.
  5. Elkhalii-Wilhelm S, Sippel A, Riemann-Lorenz K, Kofahl C, Scheiderbauer J, Arnade S, Kleiter I, Schmidt S, Heesen C. Experiences of persons with Multiple Sclerosis with lifestyle adjustment-A qualitative interview study. PLoS One. 2022; 17(5):e0268988. doi: 10.1371/journal.pone.0268988.
  6. Persson S, Andersson AC, Gäre BA, Lindenfalk B, Lind J. Lived experience of persons with multiple sclerosis: A qualitative interview study. Brain Behav. 2023;13(7):e3104. doi: 10.1002/brb3.3104.
  7. Ghasemi N, Razavi S, Nikzad E. Multiple Sclerosis: pathogenesis, symptoms, diagnoses and cell-based therapy. Cell J. 2017 Apr-Jun;19(1):1-10. doi: 10.22074/cellj.2016.4867.
  8. Amin M, Hersh CM. Updates and advances in multiple sclerosis neurotherapeutics. Neurodegener Dis Manag. 2023;13(1):47-70. doi: 10.2217/nmt-2021-0058.
  9. Mincu RI, Magda LS, Florescu M, Velcea A, Mihaila S, Mihalcea D, et al. Cardiovascular dysfunction in multiple sclerosis. Maedica (Bucur). 2015;10(4):364-370. PMID: 2846574
  10. Twork S, Wiesmeth S, Spindler M, Wirtz M, Schipper S, Pöhlau D, et al. Disability status and quality of life in multiple sclerosis: non-linearity of the Expanded Disability Status Scale (EDSS). Health Qual Life Outcomes. 2010;8:55. doi: 10.1186/1477-7525-8-55..
  11. Gil-González I, Martín-Rodríguez A, Conrad R, Pérez-San-Gregorio MÁ. Quality of life in adults with multiple sclerosis: a systematic review. BMJ Open 2020;10(11):e041249. doi: 10.1136/bmjopen-2020-041249.
  12. Dymecka J, Bidzan M. Biomedical variables and adaptation to disease and health-related quality of life in polish patients with MS. Int J Environ Res Public Health. 2018;15(12):2678. doi: 10.3390/ijerph15122678.
  13. Fernandez-Carbonell C, Charvet LE, Krupp LB. Enhancing Mood, Cognition, and Quality of Life in Pediatric Multiple Sclerosis. Paediatr Drugs 2021; 23(4):317-329. doi: 10.1007/s40272-021-00451-5.